Tag Archives: health

Worried Mother

4 Mar

If you’re been  following along, you know that my daughter has celiac disease. I’ve always been worried because along with this disease you can possibly get vitiligo. I’ll say this first and the only one time! There is nothing wrong with having vitiligo, it is a terrible affliction that many people have to deal with.

My daughter started having a little white spot on the side of her mouth that started months ago. I wasn’t worried because it was just a spot, I thought nothing of it. Now she has a couple more spots on her nose and her back is starting to look splotchy. I have already made the doctors appointment to see with this is! I would not love my daughter any less because, who would if their kid had vitiligo! I just worry because in life people with vitiligo have to go through a lot of things. Especially black people where it is very noticeable. Just ask Michael Jackson, who it turns out really did have vitiligo. I never really thought much of it, but my husband has little white spots on his arm. He is so pale and pasty you would never notice it unless you looked close up. I don’t know what it is that is causing my daughter skin to change but I could possibly be from what my husband has. I am getting extremely nervous and want nothing more to happen to my child, who already has a lot to deal with. Even though she’s always known she cannot have gluten or dairy she is still questioning why she can’t have it. She thinks that one day she will be able to have these foods, & I explained to her how its not possible but she gets a lot of fun things to eat.

I can’t imagine what it would be like to grow up in the 1960 or 1980 and have celiac disease.  it seems like there were no options for restaurants or products in the grocery store. even though the gluten-free craze has been dying down, there still are products and places to eat. and although many of these products contain oats which many celiacs can not have it still is better than nothing.

Here’s to hoping that my daughter does not have vitiligo. And even if she did big freaking deal, just another something to put on our gluten free, dairy and corn free plate. If anyone out there has vitiligo or knows someone with vitiligo I’d love some advice! My husband is the greatest because he said he thinks it’s cool because you look like those beautiful pinto horses. I just wished the rest of the world was that cool.  And I’m sorry for the Michael Jackson jokes as a kid. We didn’t know it was real or true to be afflicted with vitiligo later in life. People who don’t even have vitiligo bleach their skin from Beyonce, Rihanna, Nicki Minaj and so on . People want lighter skin or tan skin,  let’s just live in the skin we’re in.

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Endoscopy # 2

4 Mar

If I would’ve known that being diagnosed with Crohns disease would lead me to a endoscopy and colonoscopy every 3 years, I would’ve walked into the ocean and never looked back. (once is more than enough for a lifetime) It’s not that having the procedure is horrible (at least where I go because they put you to sleep) it’s the cameras. They reuse them and they are interchangeable. So what’s in your throat, goes up your butt.

I thought because I was on medi-cal that this happens. It turns out they do this everywhere! People have even gotten really sick from improperly sanitized scopes. I don’t see why they can’t make this situation better. Diagnostic centers can move you in and out like a herd of cattle. And after you had something shut up your butt or down your throat you’re glad to be herded on out of there. But why can’t someone make cameras that are for one part or the other!?

This time I woke up and was not groggy for that long. I was actually hungry afterwards, and my throat wasn’t sore.  The thing that really makes me mad is that the place is in Monterey Park. That’s where a lot of people Chinese decent live, with the REAL good Chinese food. Why does it have to be filled with gluten, and that damn corn starch! It’s like going to Santa Monica and not go to a Japanese restaurant. At least with their cuisine I can have better luck.

Next week is my colonoscopy, again. But this time I don’t know what to do! Cucumber Gatorade doesn’t exist anymore! That was the only flavor that covered up that gosh awful Miralax taste and texture. And BTW, why the hell do some men bitch about doing a colonoscopy ONCE! I swear some men can be pussy ass bitches (sorry but you know by now my site is not for kids)! My daughter had a colonoscopy at 2! Anyways, can anyone out there tell me what Gatorade flavor they use? I can tell you not to use lemon! It was horribly, ugh.

Medi-cal Insight

24 Feb

When you’re poor or, don’t make enough  money to get insurance, in California you get what is known as medi-cal. Not to be confused with medi-care, that’s what everyone gets with they’re older (something to think about). When I went to the Dr’s today,  and it was a wait, almost an hour before seeing the doctor. When I finally saw her was cool, and ordered the test I needed.

As I was leaving some lady who was in the same office as me, came up to me and was like,  “I don’t get why people yell and complain. You’re going to see the doctor,  if you need a specialist, they’ll get you to one. In other countries they don’t have health insurance” And I thought, she’s totally right! Believe me when it took 2 hours to see the gastroenterologist or 3 to see the gyno,  I admit I was a little pissed. I’ve asked how much longer is the wait, but I have never yelled at the office staff like I’ve seen some do. (life lesson: never yell at anyone, anywhere because they’ll find a way to get back at you)

I don’t who how it is in other countries, but I’ve had mostly good doctors except, for Dr. Lacypanties (that is what he shall be forever named as). My all time favorite doctor was leaving her office which sucks,  but I guess that’s life. The lady I was talking to was 53 and shot a shot in her hip for arthritis, she was fun and rachet as hell. I guess that is life, and they way you go about it effects you. She did not look 53, and when I look in the mirror I don’t look 28, I look way older and it makes me sad. I have to many health issues it’s ridiculous. But, it’s how you go about it as to how it’s going to show on your face,  body and well being. 

So I’m going to brush off my shoulders my up coming colonoscopy and endoscopy, not worry about those reused, interchangeable cameras. I will really focus on trying to be more conscience of the foods I eat, actually deal with the fact I have Crohns. I have to learn and  remember it’s not a big deal,  and never have another melt down like I did the other day.

Pamela’s Pancake & Waffle Mix

24 Feb

image

This was a huge hell yes from my husband, who’s not gluten free. So that says a lot. My daughter wanted pancakes for Christmas morning (I know,  I’m behind on my post) and I didn’t want to cook. I got this at Whole Foods, it was the only one that didn’t have xanthan gum in it.

They came out like normal looking pancakes. The batter wasn’t liquidity. When the non-gluten eaters in the family like something that is gluten free, you cherish it!  Because when they don’t! THEY’LL LET YOU  KNOW! (I know some of you out there know exactly what I’m talking about!) I made all the whole bag and it feed 5 people completely. When I’m lazy and they’re on sale,  I will definitely be getting this again!

Rating
8/10 👍

Worst Day Ever

23 Feb

I can safely say that about that day. The day I finally got to go before the SSI disability judge.
I don’t know if I ever got into it, but I had a incident that has messed up my life. Like seriously, I walk with a cane… But anywho,  after months of waiting and not wanting to deal with lawyers, I went in alone. Which in hindsight was a terrible idea. If you ever have to go before the SSI judge( I hope you don’t), and they ask if you want more time to have someone with you, even though it will take MONTHS for a new hearing, TAKE IT AND RUN!!!

My day began by dropping off my daughter at school and rushing to the bus stop. And of course as I’m  hobbling down the street 2 buses(that I need) fly by.  So I waited, 30 mins for the next bus…  As Rapid buses were flying by. (To say that I’ve got a huge love hate relationship with Google Maps, is putting it lightly… very lightly!!) Instead of the regular bus, I could have hopped on the Rapid and been on time!!  An option that google never gave me!
Anyways, as I started crying waiting for the bus, I  saw it coming. It stopped at a stop for minutes, and I’m like WTF this is seriously happening to me!  So now I’m crying, when it finally gets to me, I’m crying on the bus! (yes,  I was THAT person!) I finally got to my transfer point.. As 2 Rapid buses fly by!! I literally broke down on Santa Monica Blvd and Wilshire and I’m sure it was a sight to see.

That is the one thing that I can’t stand about public transportation… No matter what you have to do,  you’re on their schedule. I had to call the disability office and beg for them not to skip me! They said ok, and I calmed down. I took a minute to look up this judge, and after reading the comments I knew I was fucked. Lawyers were saying she a tough nut. When I finally saw her, Judge Logic, she was a shrewd woman who could give no fucks with short hair.

I was asked before I entered the room to take off my sunglasses that I wear because of light sensitivity. I asked her if I could put them on and she said no, because nothing in my file said I need them. BUT I SENT IN ALL MY PAPER WORK! No fucks! After hearing me crying as I tried to see, it was deemed that I could work and that was that. And she even said, “That is all, thank you for coming even though you were late.”  I wanted to gouge her eyes out! My eyeballs were throbbing, my hearing was done, and I left with nothing.

So of course I was crying AGAIN on Wilshire Blvd and on the bus to go to my Dr’s appointment. This is where I learned that one of my favorite Dr’s was going to be leaving. The Dr who remembers my husband on the first day fighting for me,  saying I wasn’t faking it. The Dr who did everything in her power to get me to the right specialist. Dammit man,  what a fucked up day…
She even told me 1st! And… AND was scared that she would leave and I wouldn’t see again. I’ve never had a nicer Dr and I don’t know if I  will again.

~*~Gluten Putin ~*~

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